Care Coordination

Supporting families who are raising children and youth with special healthcare needs with services and care they need to play, learn, and grow

Managing the needs of children and youth with special healthcare needs (CYSHCN) can be challenging, especially in a rural state with limited resources. Many of Montana’s families are tackling the management of doctor’s visits, therapies, insurance, paperwork, and more on their own, all while being their child’s biggest champion. Regardless of diagnosis, geographic location, or size and scale of a care team, we are building a family-centered complex care management program that is designed to truly meet the needs of families and children in Montana…but we can’t do it alone.

We are currently seeking 100 families to join our program and together redefine support for children and youth with special healthcare needs.

If you are a caregiver of a child aged 0-18 with long-term medical needs, are open to sharing your everyday experiences, are comfortable with regular check-ins with our multidisciplinary team, and are passionate about making Montana a better place for kids with medical complexity, we would love to have you join us in this program. If you’re interested in learning more, fill out the form below:

Frequently Asked Questions

How long is the wait to get into this program?

It depends! Our team is small but mighty, and we want to make sure every family gets the thoughtful, individualized support they deserve. Sometimes we’re able to begin working with new families within about a week. Other times, when our waitlist is longer, it may take a couple of weeks before we can start.

We know waiting can be hard, and we’re actively working to expand capacity so we can get families connected to care as quickly as possible.

Who can participate in this program?

Families in Montana with children aged 0-18 who have long-term medical issues, and may need help managing care.

What does it cost to be part of this program?

There is currently no cost to families to participate as this is a grant-funded program.

What kind of support will this program provide for my family?

The support each family receives will look different! One family might utilize one thing from this list while another utilizes all of the resources. If your family needs something that’s not on this list, please complete the interest form and let us know!

Medical Support

Appointment scheduling
Lab/test result dissemination
Establishment of care with new providers
Centralized communication with a shared plan of care for all members of your existing care team
Support in moving from pediatric to adult care

Non-Medical Support

Navigation of Medicaid, Healthy Montana Kids and private insurance
Connections with resources like food, housing, and transportation assistance
Communication with education partners

What is the application process?

It’s important to us to have a wide variety of families with different needs and experiences by our side in order to build a program that truly works to support all Montana families of children and youth with special healthcare needs. To apply to be part of the 100 families building this program, the first step is to complete the interest form above. Then, a team member will reach out to you via your preferred contact method and set up a time to speak with you to learn more about your child, your family, and your needs.

Who is on the care team?

First and foremost, this program is not intended to replace the care your child already receives. Our team consists of a Medical Director, a Registered Nurse, a family advocate, and our network of pediatric-specific providers, mental health professionals, and more.

Can I contact someone with questions?

Yes! If you’re not sure if your family is a fit for the program, we still encourage you to complete our interest form. However, if you’d like to connect with someone first, a team member can be reached here or at (406) 200-8242.